Doc visit
So I saw my doctor. I found out his concern. MS. He looked in depth at all my charts from previous doc and started to form a theory. The theory is we should be on the look out for MS. Not that I have it, but I have in the past shown evidence to suspect MS.He read to me what the Neurologist had said - I have *whatever* it is called in your brain that MS people have. It was a long medical word, started with a D. He asked whatever happened with the first time they went hunting in my brain - I told him that I got an MRI - they saw abnormalties in my brain. I then saw another specialist and did some weird tests with black flashing screens and noises with weird things hooked up to my head, feet, and hands. And they poked and prodded me in various places with electricity, to make my hands/feet move without me telling them to. The outcome of that was - silence. I guess I could have been more diligent in following up - because I still don't know FOR SURE but I'm under the assumption if the docs did see further evidence to suggest MS I would have been informed.
I asked him if we should keep investigating MS. He said for now, no. Because at this point even if I did have MS - they wouldn't change my treatment/anything cuz everything is normal basically. He did say, the *second* my cross-eyed "extreme brain farts" show up again (if ever) or if anything changes to go to him - THAT day. I'm supposed on alert for the brain farts, numbness in my hands, extreme physical weakness, anything... different.
So for now, we'll just be on an "orange alert" healthwise (haha i'm so funny, eh? pfft). I'm not sure how I feel about this information. I'm not sure if I should be worried. I just... don't know enough and its not like I will know until it happens. Only time will tell and what symptoms tomorrow brings. I'm not uncomfortable with that particularly cuz that's just kinda how it is now anyway - I don't know when another flare will come. But I'm not exactly comfy with the new info either. *shrug* Dunno!
So there it is. Glad he didn't say his suspicions last week though. Waiting to see him for a week would have killed me.
Edit: Dood I just looked up MS - I better not have it. It doesn't sound fun AT ALL. And I found the word - the D one that the MRI shows my brain has: Demyelination
EDIT AGAIN!: It seems I have not educated myself fully on Lupus - it seems Lupus and funny brain things are friends with each other and have fun messing you up. See? http://www.rheumatology.org/sections/pediatric/sledai.asp?aud=mem
PHEW. I was freakin' out there.
posted by Nyte @ 4:31 PM
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